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Cooperation with patient organizations

The patient comes first

For Bayer HealthCare Pharmaceuticals, one of the world's leading specialty pharmaceutical companies, patients' health always comes first. Exchanging ideas and information with patient organizations on the basis of mutual trust is an important component of our work.

Such cooperation helps us to understand the needs of patients as they come to terms with their illness. This enables us to gear our research and development to these needs and to continue working on improved, new drugs and therapies.

Bayer HealthCare Pharmaceuticals cooperates with patient organizations in all kinds of therapeutic areas. We attach great importance to transparency in this context and protect the independence of our cooperation partners.

Our principles

Cooperation between Bayer HealthCare Pharmaceuticals and patient organizations is based on the following principles.

1. In order to provide patients with quality medical healthcare, a partnership with a patient organization pursues a specific objective concentrating on one or more of the following areas:

raising awareness for certain diseases by improving diagnostic possibilities and preventive measures,
knowing the patients' prospects and needs,
understanding diseases and making sure that patients receive the best medical treatment available,
improving the information provided to the patients,
supporting medical innovations.

2. Bayer HealthCare Pharmaceuticals and the patient organizations comply with international and national laws and regulations.

3. Cooperation with a patient organization should neither influence decisions on a therapy nor promote or support specific therapies.

4. Bayer HealthCare Pharmaceuticals respects the neutrality and independence of patient organizations. Cooperation is based on a partnership between equals in which transparency and clarity are fundamental principles. This is why we also provide information on the extent and nature of support.

Overview of cooperation with patient organizations in Europe in 2011

The following is a list of patient organizations with which Bayer HealthCare Pharmaceuticals and its affiliated companies in Europe cooperated in 2011.

Headquarters

Europe

Patient Organisation	Nature and Purpose of Support	Value in EUR

Center for Health Improvement, Sacramento, USA	Support for clinical trial entitled “Proactive Dementia Care Prospective Study”	105,352
EURORDIS – European Organisation for Rare Diseases, Paris, France	Support of Eurordis Membership Meeting 2011 in Amsterdam	5,000
EURORDIS – European Organisation for Rare Diseases, Paris, France	Financial support for fundraising event to support families affected by rare diseases, raise public awareness, build the research + therapeutic development capacity	50,000
Pulmonary Hypertension Association Europe, Vienna, Austria	Support for awareness campaign for pulmonary hypertension, Rare Disease Day in Europe on Feb 28, 2011	80,000
Alzheimer’s Impact Movement, Chicago, USA	Financial support for (1) travel grants for Alzheimer patients or caregivers for the Alzheimer’s Assoc. Advocacy Forum in May 2011, and (2) to prepare and further distribute materials on the “Value of Knowing Early”	57,044
Alzheimer’s Impact Movement, Chicago, USA	Financial support to investigate legal and policy implications of early Alzheimer’s disease diagnosis	76,059
Europacolon, Ploezal, France	Financial support for Europacolon organizing the First European Colorectal Cancer Patient Conference – The Power of Patient Voice – The Challenges, Collaboration and Change to be held on 24 – 25 June 2011 in Barcelona, Spain	15,000
Pulmonary Hypertension Association Europe, Vienna, Austria	Financial support to be used as a core funding of the Organisation’s activities.	75,000
Alzheimer’s Disease International (ADI), Northbrook, Illinois, USA	Financial support to support a study on the cost impact of an early diagnosis of Alzheimer’s disease	100,000
Alzheimer Europe A.s.b.l., Luxembourg	Agency support for survey research and awareness activities associated with “Value of Knowing”project	32,114
pulmonare Hypertonie Verein e.V. Rheinstetten, Germany	Financial support of the Organisation’s Campaign for Pulmonary Hypertension during the Rare Disease Day 2011.	4,500
International Federation of Spina Bifida and Hydrocephalus, Brussels, Belgium	Financial support for 2^nd Version of the NTD Report + Awareness Activities	285,000
European MS Platform (EMSP), Brussels	Financial support for the EMSP Annual Congress 2011 to be held on the 12^th and the 13^th of May in Brussels.	25,000
European MS Platform (EMSP), Brussels	Financial support for the work of the organization	30,000
Mukoviszidose Landesverband Berlin-Brandenburg e.V.	Financial support. Sponsoring of „9. Muko-Freundschaftslauf Potsdam“	1,000
PH e.V., Rheinstellen, Germany	Travel grants for the attendance at the 2^nd Bayer PH Nurse Workshop, Dresden, June 17 and 18, 2011	305
EFCNI – European Foundation for the Care of Newborn Infants, Karlsfeld, Germany	Financial support for the dissemination of the NTD report and other awareness materials.	12,500
Alzheimer Europe A.s.b.l., Luxembourg	Financial support to enable the Organisation to develop, translate and print 10.000 copies of a report summarizing the results of the study “Value of Knowing” that was launched at the International Congress of Alzheimer’s Disease 2011 in Paris, France	140,000
Alzheimer’s Disease International (ADI), London, UK	Support for the “Alzheimer University” Berlin, June 20 – 23, 2011, including conference facilities and services, hotel accommodations and meals.	25,000
Alzheimer’s Disease International (ADI), Illinois, USA	Support to draft, publish, translate and print the results of the study “The Benefits of Early Diagnosis and Intervention”.	60,000
Europacolon, Ploezal, France	Support for meeting “Working Group on Late-Stage Colorectal Cancer” on June 23, 2011 as a pre-meeting in advance of the 1^st European Colorectal Cancer Patient Conference in Barcelona, Spain	15,000
Pulmonary Hypertension Association Europe, Vienna, Austria	Financial support for roundtable meetings and white paper development for disease awareness.	140,000
Pulmonary Hypertension Association Europe, Vienna, Austria	Financial sponsorship of specific PH awareness project, called “Time Matters”	45,000
The Angiogenesis Foundation, Cambridge, Massachusetts, USA	Financial support to develop multi-media tools to increase understanding of angiogenesis in wAMD.	134,900
The Angiogenesis Foundation, Cambridge, Massachusetts, USA	Financial support to hold an expert summit and development of a White Paper to increase understanding of angiogenesis in wAMD	195,650
Union for International Cancer Control (UICC), Geneva, Switzerland	Financial support for development and delivery of a Health Technology Assessment education course with the London School of Economics.	159,600
European Federation of Neurological Association (EFNA), Brussels, Belgium	Financial support for the 2011 courses of London School of Economics Health Technology Assessment summer school (patient academy).	25,000
Kidney Cancer Association, USA	Financial support, Sponsorship of the Kidney Cancer Association for the Seventh European International Kidney Cancer Symposium, to be held May 4 – 5, 2012 in Vienna	75,000
Europacolon, Salisbury, UK	Financial support for Meeting of a Working Group of its affiliates and associates to highlight the unmet needs of patients with late stage of CRC, London, December 2011	100,000
Europacolon, Salisbury, UK	Financial support to Europacolon for the costs associated with organizing and executing the “Mr. Excuse” campaign	30,000
Sarcoma Patients EuroNet e.V./Assoc. (SPAEN), Bad Nauheim, Germany	Financial support to become a “Sustaining Partner.”	22,000
AMD Alliance International, Toronto, Canada	Financial support for development, dissemination and communication of an independent white paper “Increasing Understanding of Wet Age-Related Macular Degeneration (AMD) as a Chronic Disease,” to be launched at AMDAI Annual Meeting May 13-15, 2011.	100,000
AMD Alliance International, Nottingham, UK	Financial support for global, year-long awareness campaign of wet AMD.	22,000
Pulmonary Hypertension Association Europe, Vienna, Austria	Support for Rare Disease Day activities using a theme of “Breathtaking PH Campaign”	435,000
Stroke Alliance for Europe (SAFE), London, UK	Payment for the services of a representative as a steering committee member for the Patient Group Summit Nov. 1 + 2, 2011, Munich	1,346
American Foundation for Women’s Health, Greenwood, USA	Payment for the services of a representative as a steering committee member for the Patient Group Summit Nov. 1 + 2, 2011, Munich, associated travel grant and services of agency serving as secretariat of the steering committee	15,591
Atrial Fibrillation Association, Bristol, UK	Services of agency as secretariat of the steering committee for the Patient Group Summit Nov. 1 + 2, 2011, Munich.	4,138
Atrial Fibrillation Association, Bristol, UK	Financial support for organization and hosting a meeting in Buenos Aires, Argentina on Sep 27, 2011, “AFA LatAm Launch Event, including services of medical writer.	44,522
Atrial Fibrillation Association, Bristol, UK	Payment for services of a speaker and associated travel expenses at Bayer internal meeting “Bayer Advocacy Workshop” Sep 5, 2011, Dublin	1,197
Atrial Fibrillation Association, Bristol, UK	Payment for the services of a representative as a steering committee member, travel grant, meals and accommodations for Patient Group Summit Nov. 1 + 2, 2011 in Munich	1,560
SZIV-SN Betegegyesület, Budapest, Hungary	Travel grant for Patient Group Summit Nov. 1 + 2, 2011 in Munich	871
Nemzeti Stroke Liga (National Stroke League), Budapest, Hungary	Travel grant for Patient Group Summit Nov. 1 + 2, 2011 in Munich	290
National Patients’ Organization (NPO), Sofia, Bulgaria	Travel grant for Patient Group Summit Nov. 1 + 2, 2011 in Munich	306
National Stroke Association of Malaysia, Malaysia	Travel grant, meals and accommodations for Patient Group Summit Nov. 1 + 2, 2011 in Munich	3,482
World Stroke Organization, Geneve, Switzerland	Travel grant for Patient Group Summit Nov. 1 + 2, 2011 in Munich	394
Active Citizenship Network, Rome, Italy	Travel grant for Patient Group Summit Nov. 1 + 2, 2011 in Munich	384
Allianz Chronisch Seltener Erkrankungen (ACHSE), Berlin, Germany	„Silver“ Membership.	5,000
Association for supporting palliative medicine at Leverkusen Hospital	Donation for the further development of palliative medicine at Leverkusen Hospital	50,000

Country	More Information

Austria	Country website
Baltic States	Reports can be received from	UAB Bayer Baltic Republics (Estonia, Latvia, Lithuania) Alina Tikuišienė MD Zirmunu str. 68A LT-09124 Vilnius/Lithunia
Belgium/Luxemburg	Country website
Bulgaria	Country website
Croatia	Country website
Czech Republic	Country website
Denmark	Country website
Finland	Country website
France	Country website
Germany	Country website
Greece	Country website
Hungary	Country website
Iceland	Reports can be received from	Bayer AB - Bayer HealthCare Pharmaceuticals Scandinavia Lennart Skoogh Box 606 S-169 26 - Solna
Ireland	Country website
Italy	Country website
Netherlands	Country website
Norway	Country website
Poland	Country website
Portugal	Country website
Rumania	Reports can be received from	Bayer SRL Romaniu Catalin Radu B-dul Dimitrie Pompei 9-9A IRIDE Business Center Building 20, 4th Floor 020335 Bucharest, Sector 2
Serbia	Reports can be received from	Bayer Pharma d.o.o. Jelena Tokanovic Omladinskih brigada 88b Belgrade
Slovenia	Reports can be received from	Bayer d.o.o. Lucija Zlodi Gosnik Bravničarjeva 13 1000 Ljubljana
Slovakia	Country website
Spain	Country website
Sweden	Country website
Switzerland	Country website
Turkey	Country website
UK	Country website